|Jack's 1st breathing treatment|
|Great Strides walk for Cystic Fibrosis|
Motherhood, for most, is a time filled with excitement and overwhelming joy. But what about moms like me who are faced with the unexpected? Potentially devastating news. Some moms were created to face challenges. One of them happens to be me. Being a mom of a child with CF is a very scary place. Not many understand it or the anxiety I struggle with. Each day I fear the cough, the chest rattle or the runny nose. I worry the next illness will end up with treatments every 4 hours, or worse, a hospital stay. I sometimes get lost in the anxiety and have trouble living in the here and now. The hardest thing for a parent to do is watching their child go through something really tough and not being able to fix it for them. I'm doing all I can and sometimes feel absolutely helpless. People with CF sometimes say it's like breathing through a straw. If you try it for long enough it feels as your lungs are straining, your head starts aching and your body starts sweating. Scary, right?
|Testing days at the clinic|
Life is not easy for someone with cystic fibrosis. My Super Jack is my inspiration in so many ways. I have not idea how I got so lucky. I can only hope I am strong enough to continue to fight for him.
|We are Team Super Jack during our walk a thon|
Recently, I found "I Lived" by One Republic. I loved the song before watching the video and realizing they were featuring a child with CF. Every time I listen I get chocked up.