Tuesday, June 7, 2016

Great Strides 2016

This passed weekend we walked in our 3rd Great Strides Walk to Cystic Fibrosis. We walk each year in honor of our Super Jack. As many of you already know Jack was diagnosed with Cystic Fibrosis at only 2 weeks old. You can read that story here. Great Strides is a wonderful that raises money and awareness for this terrible disease. We have been so lucky that Jack is so healthy. He is thriving. He is on a new medication called Kalydeco that is a life changer. Cystic Fibrosis is a genetic disorder that affects mostly the lungs but also the pancreas, liver, kidneys and intestine. Long term issues include difficulty breathing and coughing up mucus as a result of frequent lung infections. There is no cure for CF but events like this and money raised help in so many ways. This year our team raised a little ovee $1,300 

We had a great day, Jack ran the track like a star. We had the high school marching band march and play through the first lap. The band had to be Jack' s absolute favorite part. We were lucky the rain held off until we were all finished. 

The pictures were definitely lacking this year. We had such a wonderful day but poor Jack got sick later Sunday night and we ended up in the ER. He was unable to swallow or even talk we got so nervous but thankfully he had a sore on his palette and is doing much better since we got him some antibiotics and some thing to help with the pain. 


Jen said...

Jack is awesome! Great job to your whole team! :)

Heather said...

I'm glad you had a great time! I'm sorry that the day didn't end nearly as happy for you guys, but glad Jack is on the mend! My little guy's name is Jack too :-)

Post a Comment

I absolutely love hearing from you. Leave some love!