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LIFE, LOVE AND A SPLASH OF SOME GLAMOUR

Wednesday, June 10, 2015

Team Super Jack 2015


Last weekend we spent time as a family to support our little Super Jack a the Great Strides walk for Cystic Fibrosis. This was the second year we did some fundraising and walked to support people living with CF.

If your new around these parts our son Jack was diagnosed at 2 weeks with Cystic Fibrosis. This isn't the path we expected to walk with our son but we would do anything and everything to support our son.

"Cystic fibrosis (CF) is a life-threatening genetic disease that primarily affects the lungs and digestive system. An estimated 30,000 children and adults in the United States (70,000 worldwide) have CF.
In people with CF, a defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infection and obstructs the pancreas and stops natural enzymes from helping the body break down food and absorb vital nutrients.

In the 1950s, few children with CF lived to attend elementary school. Since then, tremendous progress in understanding and treating CF has led to dramatic improvements in the length and quality of life for those with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond."




I'm so proud to say we far surpassed our goal of raising $1,500! Thanks to our friends, family and the blogging community for helping us with our fundraising goals.

The morning of the walk was crazy. The weather went from torrential downpours to the sun beaming down on us. Many of the families who have lost loved ones to Cystic Fibrosis thought it was their loved ones smiling down on all of us.





Jack was amazing! He just adores people and crowds so the walk was the perfect place for him to show off. We brought along Jack's wagon with us so he could ride but he wasn't very interested. He wanted to walk and he walked 2 laps around the track equalling a half mile!

Just as the walk ended the skies opened up and it poured. I'm so glad we got to participate and support a cause near and dear to our hearts.




4 comments:

Jen said...

He is definitely Super Jack and super amazing!

Lexie Loo, Lily, Liam, and Dylan Too! said...

He's absolutely adorable! Great job raising so much money!!!
By the way, I have a Super Liam. He was diagnosed with Down syndrome when he was 2 weeks old. He's awesome!

Amy DeVito said...

Congrats to team Super Jack on raising money & awareness.

Super Jack looks like he had a great time!!

Bethany Magnie said...

what a sweetie, the cape is awesome! Good job guys!

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